Posterous theme by Cory Watilo

Weathering The Storm

Weathering_the_storm
A cruel blizzard hammers the city tonight, leaving it frozen, flattened to a lonesome standstill. Delayed buses, canceled flights, desolate streets rendered useless, people stranded. Businesses left without customers. People without visitors. As the relentless storm rages on, I will be readmitted to the hospital to undergo my next round of chemotherapy. Powerful drugs will besiege my fragile cells, ravaging my body's defenses, stripping its ability to heal, leaving me unfit to see my friends. My appetite will be destroyed, my energy drained, my spirit dampened.

Tonight, a pure white snowfall blankets the city, giving life to soft halos around Christmas-lit trees, providing feathery sidewalks for children to sweep snow angels into. People are enticed by the comforting warmth of home, brought together to share hearty meals and cheerful melodies. In this cozy time of year, I will enter the hospital to be healed, to be given more opportunity to gain both strength and wisdom. I will cherish life anew, and will, through fond memories, relive the most joyous occasions. I will smile and be thankful for life, for my family and friends. I will be reminded of what matters most and will witness sublime examples of human love and kindness.

In time, this terrible, wonderful winter will end. Spring will come, and with the trees, I will recover.

Tis The Season

Tis_the_season
During this festive time of year, I am ecstatic to be in a relatively healthy state and have so much to celebrate. Having received a truly miraculous amount of kindness, support, and care, I know I've been given the best gift of all. To my family, friends, all those who have taken care of me, and everybody else out there, keep warm and have an especially happy holiday!

A Warm Night in Cold Manhattan

A_warm_night_in_cold_manhattan
Last night, I ventured out to an art auction event my friends organized. Outside, it was cold. Hailing a taxi going downtown proved to be unusually challenging, and the time waiting sent shivers throughout my thinly shielded bones.

Luckily, the event was the polar opposite. In the gallery space, a golden wooden floor and white walls were adorned by a kaleidoscopic arrangement of unique artwork, illuminated not just by the radiant lighting above, but by all the people meeting, smiling, laughing, and dancing as the jazz band played. Friends I hadn't seen for years, friends I'd lost in touch with, caring people whom I met for the first time that night all came to say hello.

Needless to say, when it came time to say goodbye, I was exhausted (still lacking in the stamina department), though I would hardly characterize my departure as lethargic. I left happily humming Blue Monk (a jazz standard the band had done a phenomenal job playing) as I thought of all my friends, and friends of friends I got the chance to meet that night.

Since this challenging, but positively life-changing journey began, I have been constantly overwhelmed by kindness. I owe a belated, immense special thanks to my friends who supported me by organizing events in Hong Kong and San Francisco, which not only helped me get this far, but also brought joy to all those who attended. It is truly heartening to know how much positivity has sprung from this initially seemingly negative situation.

My friends, family, and of you at Hartford Hospital and Memorial Sloan Kettering, you've all saved my life twofold; I'm breathing and living, but more importantly, I understand what true kindness is, and that it is really the most important thing in life. I can't do enough to thank all of you right now. The best I can do is to amplify the immense kindness you've poured into supporting me. With my renewed energy, I've started work on a web application (I'm a designer / computer programmer) aimed at helping patients, families, and friends stick together through long-term illnesses. I'm dedicating this effort to all of you. Hopefully, with a little work, I'll be able to pass your kindness and inspiration on to people everywhere.

Thank you everybody!

Will Work For Bone Marrow

Will_work_for_bone_marrow
Asking for help from other people for survival is a new experience for me (the most I usually ask from other people is a bite of a snack or to borrow a pen). Thanks to everybody who has helped spread the word of my need for marrow / joined the registry! I still haven't gotten the results of whether my sister is a match - will let you know as soon as I do. 

Kaori registered at a bone marrow drive in NYC a few days ago and fortunately, found that the process was pleasantly simple and painless. Registering and testing for donating bone marrow only requires a simple swab of the mouth (http://www.marrow.org/JOIN/Join_Now/join_now.html). Even the donation process, in the case that you're a match, may only require giving blood (search PBSC: http://www.marrow.org/JOIN/FAQs_about_Joining_the_Registry/index.html).

Also, I realized that when I created this blog, I neglected to add my email address to my profile on this blog, and a lot of you don't have it. So, here it is (It's in an image to prevent spam emails):

Looking forward to getting back in touch with all of you!

In Need of a Match

In_need_of_a_match
Hi all - I need to ask for your help. Now that the tumor has been removed from my chest, the next vital stage of my treatment will target my leukemia. I will need a bone marrow transplant, and in order to do so, I will need a matching bone marrow donor. My sister is the most likely to be a match, but there is only a 1-in-4 chance that she will be. 

I know I am asking a big favor, but if you are willing, please sign up for your country's bone marrow registry! It is most likely that a person of Chinese descent will be a match, so my friends in Asia, please help!

Signing up for the registry will mean that if your HLA type matches another patient in need of a donor, you may be asked to donate. You always have the right to refuse, but why not help another person in need? Again, I know it's a lot to ask, but I need your marrow :)

Thanks to all who do join the registry. And to those that don't, I understand - donating blood is not for everybody!

Crossing my fingers that they can find a match for me...

For those in the U.S: http://www.marrow.org/
In other countries (a list of international bone marrow registries): http://helpingtami.org/asian_stem_cell_transplant_int_marrow_programs.html#hongkong

Belated Thanksgiving

Belated_thanksgiving
I am grateful to be alive, and to be feeling strong again. I've undergone an amazing surgery and recovery. The tumor that was removed from my chest was roughly the size of my head, and looked a lot like an uncooked turkey - a little late for thanksgiving. It's really hard to comprehend how this tumor, along with a couple liters of bloody fluid could fit into my chest cavity, and even harder to comprehend how I survived with it there.

In the three days prior to surgery, I was unable to sleep at all because reclining or leaning on my side would render me unable to breath, or set my heart off pounding at a dangerously rapid rate. I managed to doze off in 15 minute intervals leaning forward on a pile of stacked pillows, but this hardly gave me the comfort I was looking for.

One day out of surgery, I was in the ICU, and they promptly had me sitting upright and walking. Two days out of surgery, I was walking faster and further than I ever could in the past three months. My breathing has steadily improved, and my muscles, without that resource-hogging tumor, seem to finally be repairing themselves.

My cancer is far from being gone, and there's still a lot of treatment required, but having this tumor off my chest will certainly be helpful!

I give my deepest thanks to all who have taken care of me and carried me through to today.