Posterous theme by Cory Watilo

Hidden Scars

Hidden_scars
To be discharged directly from the ICU is an unusual occurrence. For a week, I had been in too good a condition to be there, but with no beds available on the leukemia floor, there I stayed, waiting. My blood counts gradually rose. The available bed count did not. Without reason for remaining in the ICU, and no bed, it was time for me to go home. I was released from my unwieldy tether of tubes and wires, free to walk as far as I pleased in any direction, free to rediscover the world outside the hospital.

Through the window of the taxi, everything was strangely new to me. The vast expanse of snow-covered trees and benches in Central Park contrasted so greatly with the crowded landscape of IV poles and stretchers to which I had become accustomed. I saw fashionable coats and boots in place of hospital gowns and non-slip socks, heard car horns and chatting couples rather than the beeps of medical devices and the subdued discussions of doctors.

It seemed at first that the hospital had become my home and my home had become a foreign place. Upon revisiting the hospital two days later for a follow-up appointment, I found that it wasn't just the outside world that had changed. The hospital with which I had become acquainted was seen from a wheelchair, stretcher, or hunched over the handle of an IV pole. Time and distances seemed unbearably long. Elevators crawled, and hallways were endless.

But on this visit, I walked upright, wearing outdoor clothes and shoes. The elevator was just a short distance from the building entrance, the ride up to the fourth floor was brief. Along the way, I saw the tops of people's heads rather than undersides of chins. I was no longer an inhabitant of this place, but a visitor passing through. There were other former in-patients seated in the clinic lobby whom I recognized from the leukemia floor on which I had stayed. They had also exchanged their hospital gowns for winter coats and scarves, wholly indistinguishable as cancer patients, and would soon leave the building to blend in with the rest of the people walking the streets outside.

It is rarely evident on the surface all that a person has gone through in life. The scars on my body have all become hidden from view beneath layers of winter clothes. I have lived a healthy life, experienced the deterioration and weakness that old age brings, been near death. Now, I feel reborn, gaining strength, relearning how to walk, to eat, to be independent. The newness of the world around me is a great thing. I have been given a second life, a second chance to readily absorb my surroundings, to learn new things, only I can still recall all I have learned from my previous life. I am grateful for this, for it has given me both a new understanding of people, as well as a renewed sense of purpose, an urge to use all that I have been given to give back to the world.

Tomorrow, I will return to the hospital for a bone marrow biopsy and CT scan, the results of which will determine whether a bone marrow transplant is possible. No matter the outcome, I am glad to be feeling well at the moment, and immeasurably thankful for being given the strength and support to endure a journey more arduous than I could have imagined.

Less Energy, More Wisdom

Less_energy_more_wisdom
Friday morning, I stood up to have my weight taken. My vision blackened. My sense of balance faltered. Could I just be exhausted, having spent the majority of the day prior practicing the guitar? Perhaps my red blood cell count had dropped due to my last round of chemotherapy. My blood pressure indicated a different problem. An EKG and ultrasound later, it was determined that fluid had built up in my pericardium, the sac containing the heart, impairing my heart function. Interventional Radiology drained nearly a liter of fluid from around my heart, left a chest drainage tube, and sent me to the ICU to be monitored. While there, some late effects of the last round of chemotherapy arose; my appetite, hair and energy all left me at once.

I have observed that when I am feeling energetic and well, I spend the majority of my energy getting work done and enjoying myself. This activity-focused behavior leads to an accumulation of experience and knowledge, but not understanding. In contrast, during times of sickness, while I have little energy, I tend to use every bit of it in contemplation, taking nothing for granted. It has been during these times in which I have gained the most wisdom in life.

As I find myself on the way to recovery once again, I question, once I have fully recovered from my sickness and find myself with ample energy, how and whether I will remember to take nothing for granted.

Dedicated To You

Dedicated_to_you
With my gradually increasing energy level, I've started designing and programming FamilyLounger.com. It will be a website consisting of super easy-to-use tools to help patients and their loved ones through tough times. This project is dedicated to all of you who have helped me in more ways than you can imagine.

Small Talk

Small_talk
Having recovered from a fourth round of chemotherapy and another bout of pneumonia, I'm starting to taste a bit of normal life. But there are always the funny little things that remind me I'm still leading the hospital lifestyle.

Take my recent conversation with my nurse, for example:

Nurse: "Hi! How are you doing?"
Me: "Good. How are you?"
Nurse "Great!"
Me [remembering seeing my nurse many times over the past week]: "How many days a week do you work?"
Nurse: "We don't do days per week - we do days per month" [The conversation continues... Skip forward,,,]
Me: "How far from work do you live?"
Nurse: "Not too far. Downtown."
Me: "So how long does it take you to get to work?"
Nurse: "About twenty to forty minutes. So have you moved your bowels today?"

Yep, that's part of the everyday chitchat here in the hospital. Imagine asking that question in the office...